[livingwith]

My 7 year old son and I live with CMT everyday. I have difficulty with simple tasks that healthy people take for granted. My son is progressively worse than I was at his age. I feel terrible when I think about how much worse it will be for him when he is my age. It is difficult to find a doctor who knows anything about this disease. I don’t feel like I get any answers from any of the doctor’s we see. The local MDA clinic is a great resource for support. I am completely devastated...Read the full article