Charcot Marie Tooth Disease

[eban]

I was diagnosed with CMT in November of 2007. I first started have issues with my feet in 2001. I went to a Kaiser doctor who sent me to a podiaterist and he said my feet were hurting because of rapid weight gain and told me to wear New Balance and Doc Marten shoes and almost $300 later and no relief I was frustrated to get answers. Around June of 2005 I found a article in my local newspaper written by Dr. Paul Donahue it was a question and get the answer type thing. The questionee wrote that he was a 48 year old man with the same symptoms as myself, burning aching feet Than I thought d*** I found my answer I call CMT society and told them everything about my feet the burning tingling of the feet and high arches and hammertoe and they said I had every symptom of CMT so I went another Dr. and he took blood test to which no nerve damage was found and for a year or two I didn't think anything of it. but my feet got worse and it has started to affect my hands. So I went back to same Dr. this time he sent to a neurolgist and he did a nerve conductive test and with in 15 to 20 minutes he turned to me and said you diagnosed yourself right. I'm soon to be fitted with braces. My biggest fear is where it has now reached my hands. My hands sometimes shake so bad I can't write and I'm getting the same burning and tingling feeling. I may try physical therapy I still lead a fairly active live I'm going to try more water exercises. My biggest fear is I may never be able to golf because of my hand.