Fibromyalgia

[armywifey]

After 5 years of fighting with doctors thinkin i just wanted pain meds, i finially ended up with a doctor that actually read my medical history, and he has been trying to keep me pain free, I had to quit work, not like I was even over the last years to even work but I was trying, He put me on several medications, im on the highest doses of most, and still some days i cant even move because the pain is so bad, He added Valium to the list of my medications, I have asked him to not put me on pain killers, And it does help a lil more the the other meds, My husband has been very understanding and is helping me deal with this. I guess I am lucky with that when i cant do anything because I hurt so bad he just tells me to take it easy and he handles it all. He also gets mad at me when I try to do things around the house because he knows it is going to end up making me hurt for days after. He is going to be deployed ina few months and my mother is coming up to stay with me, to help me out. Is this ever going to get better? will i ever be pain free? no one seems to be able to answer that question. I am very lucky with my husband and my doctor, ( his mother has it and he has dne extensive research on this condition) so he is very understanding. The cold seems to make it alot worse. Can anyone answer my questions on will it ever get better? will I ever be normal again ? I feel like I am a 35 year old living in an 80 year olds body.

[ralph pelkey]

No it doesnt get any better.IT GETS WORSE. I know it doesnt seem possible but it does.The cold this winter has really torn me up i was in bed for 6 weeks and could not get up only to use the restroom when i did get up it tore my body down that much more i wish every body that was around me could live in my shoes just one day to experince what we go through.You might try lyrica it help me a lot at first now its just like nothing helps i wish all the best for you i really do and i hope you find relief if you do please let us no GOD BLESS R PELKEY

[armywifey]

I am already on lyrica among many other meds. and you are so right this winter has been awful to say the least my dr added valium to my list of meds to try to help my muscles unlock, and it does not work at all. It knocks me out so i dont feel the pain at least but i cant sleep my life away. I thank god that my husband is supportive of me and helps out alot. But sometimes i just wish that they could fix this so i could be normal again. the computer is how i try to keep my mind off the pain. cause i want move around to good, and as the weather got colder it got alot worse. thank you for replying to my post it really does help to know i am not alone in this. I wish i was though. because too many i know are living with this condition and it sucks. thank you again

[ralph pelkey]

I realy glad you replyed it is so nice.I to spend a lot of time on the computer i try to reply to all the new post i want people to know we are out here and theres someone that cares and knows what they are going through.Im really glad your husband understands and helps you.My wife helps me through everything she is just awsome. Im realy sad that your so young im 50 now ive been fighting this for 13 years. do your muscles feel like they are hard to the touch like you are becomeing rigged.do you have any depression.im now getting involuntary body movements im having problems with my eyes im getting where i get confused some times i just cant rember how to spell simple words.my meds now are ULTRAM @200mg once daily LORTAB 10s twice daily LYRICA 150mg three times daily and percoset 10s at bed time and trazadone 300mg for sleep The sleep i dont do much of.You know the worse thing about this disease were the guiney pigs not many doctors ive been to know much about this.The worse thing is you find information off the web and they dont read it or try to find out any more info to try to help us.Are you on SSI Ive been trying to get on it for 5 years and still have gotten no wear well i had a good day today i hope tomorrow is a good day to me and my wife went to pratt kansas to see our youngest son who is 22 old the youngest manager of a oreillys spent the weekend with him and our daughter in law we are lucky to have her she is one of a kind.well me and my bride will keep you in our prayers and with my hopes i hope every day is good and gets better take care RALPH AND KRISTI PELKEY

[armywifey]

SSi dosent consider fibro a disibility. my muscles tighten up to where i cant straighten out my knees and elbow, hurts big time too, I am on lyrica150mg 3xs a day, valium, my doctor tried that to see if it would help with my joints but it hasnt. Zoloft 150 mgs a day, for depression i am also on migrain meds, maxed out on them also, and ambien to help me sleep when i cant. but lately that hasnt been an issue im sleeping most of the time, im not depressed but most of the meds i am on cause it so the doctor put me on depression meds so i wont get depresssed. Where i live and it being so cold, i havent had a good day in months LOL cant wait till spring, and summer, my doctor told me when he explained to me what i had that this isnt new, its been around since the 70s and he told me most doctors dont believe in it because there is no test to confirm that we do have it. and that is why ssi dosent consider it a disibility, i wish they could walk one day in our shoes and then tell us it isnt. anyways good luck and i hope you have more good days then bad

[ralph pelkey]

I live in wichita kansas where the weather goes from 70 to 30 in a couple of hours and you know that is hard on a body. today it was 61 tommaro its going to be 72 thursday its going to be 28 so i guess we will no when im going to have a bad day.I have a lady i no that got right on ssi because of fibro.My niece just got on ssi because she FAT AND LAZY.Man that just makes me so mad.you know the thing that bothers me most the meds im on causes weight gain ive gone from 145 lbs to 220 in about 2 years you can diet and all i do is put on more weight im only 5'6 if i put my brown coveralls on i look like winny the pooh what a crock.im glad my wife likes little fat guys ha ha where are you from the east coast im from dover new hampshire grew up in guam then i find out that there was a palm tree that they ground up and used it for fillers in flour and food products and it causes ALS in fifty % of men well must go for now GOD BLESS

[armywifey]

im in alaska until oct 2010, my husband is in the army so we get moved aroundalot , and atm it is always cold here so you knwo im always having bad days LOL my doctor is mad because i havent gained weight ive lost weight on the meds, and he is trying to figure out why, i am 5'2" and i weight89 lbs, i was before i started the meds 106lbs . so ya he isnt happy with me at all LOL i have read alot about fibro and alot fo different web sites. and my doctor told me today taht im considered a sever case, he also told me that they are trying to figure out if fibro is caused by a mental problem (ie stress, depression etc) or if it is actually a medical one, he himself thinks it is medical. so ya i am just happy he understands and is tryig to help me keep moving at least if not very well i gotta go tis dinner time you take care

[ralph pelkey]

I started going to KU MED CENTER in wichita its a teaching school.I talked to a specialest and he said that theres a lot of things they THINK may cause it .Trama as a child,spinal damage,or a cross between lupis and ms or just a virus. You know the shot you got in your left arm as a child he said there was a live virus in it that they could not identefy well they no what it is now its a strand of the herpes virus and he said they think that is the real cause of firbo.who knows ya think with the doctors we have now someone could come up with the right answer.ALASKA my gosh what a place to be with firbo it is 72 % he today shorts and tee shirt weather but hang on for tommaro. My doctor said my case is sever to the problem we have here is a pain managent company got busted for over perscribing pain medicene so doctors are scared it perscribe any pain medicene.To get the med you can not see another doctor without telling your primery doctor and they drug test you every month to make sure the medicne is in you systems and no street drugs are.Have you tried warm water therpy im going to i cant lay down in a tub all we have is shower just like to try and see if it helps any relief is better than none well must go for now BE WELL talk to you again

[armywifey]

Who knows what causes it. at this point i really dont care, i just wish they could fix it or do something to make it better. my doctor yesterday took me off the valium thank god but he put me on muscle relaxers Robaxin 500mg 3xs a day , so far it isnt helping he said my muscles are so tight it might take a few days for me to feel the effects. but at least im not knocked out LOL. He also upped my lyrica, he really didnt want to but at this point he said we need to try it, baths really dont help, ccause when you get out your cold again so it really dosent help. i have a friend wtih it also, and she like me does have spinal damage from when we where in out 20s. so that might be it, but who knows.Well i need to go lay down and try to relax a little, my doctor also suggested yoga they have a dvd for people with ifbro. i ave it but right now i cant even try to do it because i cant strech and he dosent want me to try he is worried i will tear something, which i dont want to do so lets see if my new meds work, He dosent put people with fibro on pain meds, he said they are addicting, which they are. and they really dont help which i know to be true because my doctor before him put me on them when i had asked for muscle relaxers and they really didnt help. im just glad i found a dr who cares and is trying to get me sorta back to normal, walking is hard for me most days because i cant straighten out my knees cause my muscles are so tight. anyways i gotta run talk to you later

[ralph pelkey]

Hi, I'm Kristi, Ralph's wife and I feel for both of you. There are times he can't move out of bed. I have stretched his legs and massaged them, he says it helps a little, but the pain is still there. He would like to be normal also, but I'm afraid thats not going to happen. He has good days and bad days, the bad ones out way the good ones. I keep him walking, but hes like you, his muscles freeze up on him. We live in tornado alley, and the high and low fronts come in and it just tears him up. The Dr can only do so much since this is a disease they can't see, so for now we are looking at anything that will help. He is on depresion med. but I try and keep his spirts up and get him outside on warm days. I guess in your case, you can't go outside, sorry. I just don't know how you do it at all, cause I know the cold he can't handle. Have you thought about moving to Fla.? I'm glad he has someone he can talk to who has the same thing he does, cause it helps him so much, and he doesn't have to get out of the house and sometimes this is the only contact he has. He would love to go back to work, but his body will not let him, he might be up for 1 hour or so and the pain is so bad, he has to lay down, so please, keep in touch it does help him, as I hope it helps you. Do you mind if I ask if you have kids, and if so, how do you do it. Ours are all grown and gone, I got my husband a puppy cause with me gone all day, I wanted him to have something to keep his mind off his pain, if that was possible, at least he doesn't have to change diapers or anything like that, however, this puppy thinks he is a kid, and he knows when his dad don't feel good and stays right by his side. Well I won't keep you, I wanted you to know I'm thinking of you and will keep you in our prayers. Take care and I hope you get to feeling better!!!