Reflex Sympathetic Dystrophy (RSD)

[livingwith]

My name is Brit and I’ve been diagnosed with RSD for over a year and a half. I went to Dr. Sherry’s program in Phily. It really helped, but I still get attacks and it recently just spread from my arm and back to my leg.
Most of the time I feel halfway normal, no pain just weak. When I get a flare up I feel like I’m being burned alive and no one will or can help me. The worst part is my family won’t stand by me til’ its gone, they just leave. I’ve lost my frie...Read the full article

[penney]

Hi Brit I'm so sorry you have RSD! What test did they do to know for sure you have it. I just had foot surgery and I may have RSD now. My family Dr. had done blood work, xrays, and a bone scan today. I have all the symptoms of RSD but no one will really listen to me about how bad it is . I understand what you mean about your family and friends. I'm sorry about that also maybe someday they will undestand. I wish you the best of luck with your treatment. God Bless You. Penney

[jimbo320]

Hi Britt,
Sorry to hear of your RSD condition. I too have RSD resulting from an accident back in 2007. I've been taking neurotin for the pain but the neurologist is having me switch to a stronger med called lyrica. She switched me because the pain is getting worse as so is my RSD. I can relate to it be immobalizing
cause I just getting interested in teaching myself to play the piano. Now I can no longer use my left hand. Luckily most melodies are done with the right hand so I might be a one handed piano man.
What I'm trying to say is don't let the RSD win....