[livingwith]

After reading lots and lots of stories, I finally decided to post mine. In October of 2006, I was diagnosed with an inflamed nerve in my leg. This was after numerous trips to the doctor and emergency hospital due to the most excruciating pain I had ever experienced. Finally, a pain specialist put me on Neurotin and Vicodin.
On January 1, 2007, my horse fell on me during a competition, breaking my foot in thirds. This was the same side of my body where I was already experiencing the leg pain. T...Read the full article

[blondie_rsd]

i know exactly how you feel i had first gotten diagnosed with RSD in 2005, it was summer, and, June 23, my friend and i were jumping on our trampoline and when getting out my sock got caught on the safety latch of the saftey net (ironic i know) and we had thought i had just broken my hip but no tjhe diagnosis was much worse after a miserable trip to the beach with increasing pain tht i had never felt worse; unbearablei thought would go normally but ended up being the downfall of my entire life im young past driving age i wont specify since im on the internet and we being my mom and i tried everything in the book agressive phisical therapy which worsened the syndrome and spinal cord stimulator epidural for a week and every kind of meds of course as u know all of them on the planet we went to an acupuncturist and the pain was too unberable to even withstand tht but we finnally had the nerve block done *no success and so our last resort other than to let my leg waste away was to go to a recommended acupunturist in town and so we did it took 6 months to get the siering pain to a tolerable level but it never completly went away ive had the pain for 4 yrs now and like u have mentioned have wanted to just go and end it once and for all every day but i have to paste tht fake smile on my face every day and i lied to my mom for 3 yrs and finnally it flared up again to the unbearable point im so depressed and miserable but i think tht i just need to know tht there r others out there.i still cant walk and the pain by the dr.'s reading will never go away but i just wanted to talk to someone about RSD oother than dr's tht i can relate too please reply or chat back i would love to converse with u about this subj.
thanks,
Em

[ccronk]

Hi Em,

I am sorry to hear that you are not walking. I hope that you get to a point that you can walk; I have found that the more I can push the exercise the less the nerve pain. My leg had shriveled to the size of my forearm. It bothered me so much that I went to gym and use the weight machines with that leg.

You sound like you are very young, and it breaks my heart to read what you are going through. It is very difficult to explain to others what we go through. People say to me that I must be all better by now. They don't like to hear my response, but I won't lie. I tell them that I am in pain all day, every day. I have given up trying to explain RSD to those who don't know what it is.

My doctor says he wished everyone tried as hard as I do to push through the pain. I tell him that RSD is a monster I try to keep in the corner the best I can. If I cringe from the RSD monster, then the monster gets bigger and I get smaller.

I am scheduled to have additional nerve blocks this month, and I actually welcome them as I know they will alleviate the pain for a period of time. Let's talk some more; I am doing fairly well right now. Not that I don't hurt, I am just thrilled when pain is bearable and I can fall asleep without additional drugs. I do know how important it is to have someone who shares the pain when yours is at its worst.

Carol