[islandgrl]

Was wondering if anyone is experiencing any type of symptoms in this area - I have been seeing my gyn with no relief and am thinking that this is where my issues are stemming from. Have had rsd for 2 years now and am dealing w/this going on a year or so. I also have a lot of pain especially in my lower back right side (rsd started in my right foot) and the ct scan shows nothing. I know I am not imagining this pain. Can anyone relate???

[meglaser]

Icu too suffer from this. My first encounter with my pain mgt doctor, whom looked at my mirs did tell me that as I got older the more problems I would encounter. I do know I have a cist (non cancerous), however my uterus is tipped towards my back. Point being this is another item pressing up against nerves during certain times of the month. I do not want to have a historectory until it is last resurt, however after last month I almost wish I would go through with it.

I have decided to ask all of my specialists their oppinion regarding back surgery again - I am on no pain meds execpt for antiseizure and depression meds. (The docs feel that this will work) It does somewhat but I still feel pain! If I cannot have surgery so they say but it is time for second opion or go for the procedure I went through last year where they burned my nerves (I do not know the technical name) = This was a fix for approx one year. Here too you feel some pain but not the dehabilitating pain. This cuts back 60-80 pain (if they hit the correct nerves ( this procedure was for my facets. The year before I had a stimulater put in my back and this took approx 40-50% of the pain

If you are like me even if you get 10% coverage without meds it is a wonderful thing.

Curiosity - how long have you had this evil desese and where are you from? The reason I ask is that everyone of specialist understand this disease (expecially my ne neurologis whom basically takes RSD and if affiliated and teachs at two hospitals in Pa. There is another neuro at the same office who also specializes in rsd. I do have another nuero who is excellenct but does not know as much as these other dos. I cannot stop seeing him as he treats me for other things and was the doc who went out of his way to have my heart checked (the tech found the problems, however the doce reading the results dismissed it (friday before memorial day and i was the last patient) Cardio cannot find it by my RSD doc did! when i go from lying down to standing up I faint and there are times where it looks like a seizure )only on person withnessed this) I usually can tell before hand, however the docs cannot seem to fing it. this occured on my last visit. (I spent a total 22 days in the hospital until they could find something - as u know hospitals become extremely ditested!

Good luck to you and I will keep you in my praers!

Sorry so long winded agai

Good luck

[Bussey]

Hello Islandgrl,

If I am not mistaken, I think I am seeing your post for the first time. I also suffer from pain in my pelvic area, during flare ups. Initially, the pain was in my knee, which was like an aching pain, it was also in my inner thigh, which was more like very bad burning pain, and sometimes the other side of my thigh would just hurt. However, a while ago, the pain moved up into my pelvic area, as well. I know that you are not imagining the pain in that area, because every time I flare up in that part of my leg now, I have the pelvic pain, as well. I have seen several articles about those who suffer from chronic pain, dealing with pelvic pain. It's not in your head. That pain is real!

I hope that you are doing better, and I wish you all the best.

Bussey