Reflex Sympathetic Dystrophy (RSD)

[Truth Seeker]

RSD can change our vision, in my case it provided me with "visualisations" of phenomenal magnitude.
The following might be of interest to all RSD patients.
There is a direct connection to the amygdala in the limbic region of the brain. This means that when the eyes witness something emotionally charged, signals go directly to the limbic region for analysis and quick response ( a similar connection goes from the ears to the amygdala so that the eye and ear coordination for emotional response are possible).
This short pathway was not known for many years when it was thought that visual tracts went to the neocortex first for processing and then to the limbic region for emotional analysis.
This helps explain why emotion and emotional response sometimes overpowered reason or logic or even self-preservation.

My reason for sharing this is to say, take your emotions seriously, avoid stress as much as possible and do not allow anyone to play your emotional strings like a guitar, causing them to vibrate.

Truth Seeker

[meglaser]

Hi Truthseeker!!

It has been awhile. Where do you get your info? I have been having MAJOR problems since I got sick a few weeks ago as follows:

stress and a cold - my left eye (which is the side of the initial RSD and the last limb to be attacked) pupil is not responding to the light again which I have known about this fact since the beginning and I have known about the stress since the beginning. What I did not know and I was think was I have had buzzing off and on actuallyfor approx 1 and 1/2 months and when this occurs I cannot hear out of that ear. I meantioned to my husband last week that I tought since it was not an ear infection or was buildup that maybe it was the RSD since it was the left side of my body. (of course my somache has been acting up again as well) Now you know why I have been lying low for a while as I do not want to keep whining any more.

Thanks for sharing your info as you always have good things to share with us!

MEG

[Truth Seeker]

Hi meglaser, nice to hear from you again.

You have asked where I get my info from?

To explain this as honestly as I can, I would have to go back to the onset of my RSD, almost fourteen years ago.
A severe fracture and surgery had caused my RSD, which became full body, effecting my entire human system including my brain.
When I noticed a change in brain activities (including vision and hearing), I became very frightened and alarmed.
Doctors appeared to be clueless as to what was happening to me and consequently became very cruel, which in turn created so much stress for me, escalating my RSD.
That is when I realised, that doctors had become a negative trigger, which I had to get rid of.
Doctors actually had started the snowball to roll and when it starts to roll, there is no stopping it, but to stay in the doctors hands, would have been self destructive.
My physical pain was so severe, that I just wanted my life to end, but my wish was not our Creators command.
For reason I do not claim to fully understand, I sensed that there was a way to retrain my brain, to think differently, but to be honest, this process was much more difficult than I could have imagined, because it was a lot more exhausting than the severity of my pain.
Retraining my brain is the hardest thing I have ever done in my life, because we have to confront so many unknown fears, but once this process has started, there is no turning back, we have to push forward.
As my vision was changing, I also realised that there must be two vision centers.
While doctors had told me that I was in need of a psychiatrist, my vision actually had triggered a higher level of brain activity.
Combined, all that I have experienced, would lead me to a different kind of research.
RSD websites do not provide me with the information I am looking for.

I have learned the following.
There are two separate movement tracts, one is controlled by the higher, conscious brain (frontal lobe primarily), and the other a part of the subconscious functions of lower brain areas (ie. the cerebellum, pons, thalamus, basal ganglia, limbic system). The lower brain controls the movement tract used for subconscious navigation.
This tract monitors the velocity of optical flow across the retinal surface. This system cannot detect (cannot see) stationary objects.
The higher (fore brain) system controls the eye head movement tract. This system works when we voluntary will our eyes to move explore and concentrate.
People with nystagmus will never see the oscillating world.

Meglaser, when I think back, how badly I was treated by doctors, surgeons and neurologist's, friends and even family, than I can only pity them, because I have told the truth from day one.
Any one who does not understand the oscillating world, will "never" understand what I am talking about.

Sorry, about the long answer to a short question.

Truth Seeker

[meglaser]

Hi Truthseeker!

I am so glad you have shared yuur story as I have had my rsd since 2001 from a bunion surgery. Ir was somewhat in check but over the years with my stress factor of work (auditing) and home and the same as you - family, friends, coworkers and doctors forgeting about the rsd and not understanding it I was really never treated properly. Now ihave it in my right arm my left shoulder, it is affectig my stomache (although the rsd doc is the only one who understands this all others say its from the meds- the stomache pain is only bad when I am stressed) My heart is going through the sincapea - This year was very bad for me as i was in the hospital x 22 days.

Pain mgt has somewhat kept it in check but I am not going any more. Now without pain meds my rsd and back pain (which is making my nerve pain) is putting my rsd out of control again. Pain mgt did send my to a RSD neoro specialist who excellant. He picked up so many thing s the first vistit that just blew my mind. My other neuro is excellant as well but not an RSD specialist - he is very good in other areas.

I will be going to social security docs for evaluation next month. It seems that everyone think I am depressed which I do not think so just frusterated. so we will what will happen. I know I cnnot handle working full time anymore as the pain, coldness and vision is too much to handle and does get intense when I work as I am extremely high strung. I tend to tight every muscle in my body which sends the nerves in a fenzy the rsd goes crazy and u know the rest.

Like you I have found that I need to retrain my brain. I know that I have some intellegence as i did pass the cpa exam but i cannot concentrate on work anymore or retain information anymore, So what I am doing is - I went back to school to try and restimulate my brain.

Now I am sorry for being too long! I do love the items u share as u always have interesting and informative information that I can never find when I am looking at sigts. (I never look in the right places_

Thamls!!

meg