Reflex Sympathetic Dystrophy (RSD)

[Tiness]

I have seen those devices all over the Net, but would like to talk to somebody who's tried one. My wife has had RSD for 2 years now. She has had a Sympathectomy that hardly help and she still has to have nerve blocks every 3 weeks. She needs to try some thing else.

[G0J0G0]

Hi Tiness,
I answered your last entry on this subject, and I ask that you allow me to make an observation. This disease has been recognized since the Civil War and there are no known treatments that cure the illness. The disease is an autoimmune disorder that is treated symptomatically. I have been under some of the best doctor's care available and these devices haven't ever been mentioned, so as a lay person on the outside looking in I would say they would be largely ineffective. If there were any hope for this treating RSD then doctors all over the country would be lining up to offer this to their patients. I make these observations and statements with all of the compassion I can bring to words. I am an RSD patient and would love nothing more than to have my life back and to be able to love my wife physically as I have been for the last 25 years. RSD has robbed me of the life I have thoroughly enjoyed for the 50 years I have been on this earth and I can tell you that if there was a glimmer of hope in these devices working then I would have heard of and tried to secure one. If you have the pleasure of to talking someone that has used this for RSD pain, please post it here for all to see and have the hope of regaining the joy we once called life.
Is your wife under the care of a pain management doc or a specialist that is familiar with RSD? If so carry the info on these devices to your doc for his/her opinion. I read some of the articles on the products and RSD wasn't mentioned in what I read and I can't help but to think that if these worked on this horrific disease then the medical community would be singing it from the top of the Empire State Building. At the bottom of the page I copied a section from the site for Acusen and it says it is contraindicative for people with hypersensitivity to electric current... While many people use TENS units with marginal success, RSDers are hypersensitive to most all stimuli and Spinal Cord Stimulators (SCS) work as a mild electric shock I would be weary of anthing with this kind of warning... Please be careful for future injury can cause RSD to spread system wide or all over the body and you certainly would not want to cause this disease to spread from the original or current locale.
I hope this in some way helps, g0j0g0

Contraindications

Individual intolerance (hypersensitivity) to electrical current.

Heart pacemaker

Serious mental diseases

Acute infectious disease of obscure origin

[Tiness]

My wife was told of these products from a doctor in Quebec but he is a bone specialiste not a nuaroalogist. All he said is that it might be worth a try. We told he pain specialiste about these products and he knew nothing about them and told us to try to get one on a free triel bases. No luck yet! Excuse my spelling I'm french.

[G0J0G0]

Hi
No problem with tht spelling, mine suffers a bit as well, especially since RSD. If you can get access to one of these units as a "freebie" then you are ahead of the game. In researching and reading up on these products I would have to try before I buy when considering the price. I hope they work well for you and if you don't mind, let us know how and if they work, here is hoping so. Be blessed, g0j0g0