[skotw]

Hello everyone!!..first i would like to wish everyone a good day.I have not been on here in a couple of weeks. It's been pretty ruff for me as of late. my right wrist is getting worse for me i think. more severe burning and pain, with cold spell in between.

My Question is to everyone. I was wondering if anyone has experienced these side effects from RSD Along with my family i have noticed that i am having more anxiety and nerve problems lately. I seem to get aggitated alot easier and find myself not wanting to go out in public in fear that someone might bump into my arm and hurt me. I also loose my temper really easier than ever before. I use to be very easy going and in a good mood all the time, now i go off on any and everyone at the drop of a hat! So now i see myself drawing further away from people and family memebers, so i want hurt there feelings or be mean to them when its not really there fault. I hate RSD!!! It has totally changed my life and everyone's around me! And w/c still wont send me to a pm dr. to get meds for my nerves and anxiety I'm so affraid when we go to court in oct. that there going to get let off the hook for this disorder that i have now! that scares me the most. On a side note my lawyer has got me an appointment with a new RSD specialist so maybe i will get a better 2nd oppinion this time. I'm still frustated at dr. Halprin for his 2nd oppinion he gave me. I hope no one else goes to him...he was hired by w/c to access me a few weeks ago. he is in the orlando fl. area.

I feel like this is the only place i can come to to talk to ppl who understand what i am going thru. So glad i found u all!!! thx for listin....have a great day!...skot

[Truth Seeker]

skotw,

What you are going through is perfectly normal.
I remember the day a good friend of mine tried to do something special for me to get me out of the house.
We ended up in the city where we went to a specialty market, which under normal circumstances would have been something I would have truly enjoyed, but instead, I stood leaning against a wall, my injured foot lifted off of the ground out of fear that someone accidentally would step on it or even just bump it.
After this we decided to have lunch, it was a beautiful summer day and we were sitting on a terrace overlooking the water, piped in music all around us, people were talking and laughing, the food was superb and than all of a sudden, I could not stand the sound of music, the voices of the people became irritating and I lost my appetite, I just wanted to go home.
On the way home, my long time friend said something, that must have triggered something, because all of a sudden I yelled at him in a manner very much unlike me.
I could not believe my own reaction, where did this come from? and yet somehow I just did not care.
Eventually, I isolated myself from people more and more, general conversations bored me tremendously.
I began to insert myself 100% into my RSD world, always searching for answers and finding more than I had bargained for, it became a full time obsession for years.
Over the years I learned about the differences between stress and anxiety, how to separate and deal with them.
Stress usually is an outside interference of unrealistic expectations others put upon us, compared to anxiety which is self induced.
Allow yourself to get in touch with your inner anger, it can have positive results, but never act upon your anger, the thoughts in the privacy of your mind, are yours and yours alone.
Do not back away from your most inner fears of the unknown, but rather confront them head on.

I wish you well

Truth Seeker

[reruho]

Skot,
I have to agree, what is happening is pretty normal for RSD. I do not have the anxiety. I developed HBP after the onset of symptoms. I also developed elevated cholesterol, not high only 218. I have had insomnia, depression, a bout with exzema and Dry Eye Syndrome. I have a problem with loud noises, which is difficult with a teenage boy in the house. It drives my husband crazy because I listen to the TV at such a low volume that he can't hear it.

I want to warn you if you have any meds that cause dry mouth, be aware that it is also drying out your eyes. I have been having a terrible time with my eyes hurting because they are dry. I have eye drops but they don't always help.

Reta

[Truth Seeker]

Good morning reruho,

I found one of your comments very interesting.
You stated, that you have to turn the TV to low volume because you are having problems with loud noises.
This is another example of how differently RSD can effect us, because in my case it was the extreme opposite, I had to turn the volume way up.
In the beginning of RSD, noises bothered me as well, but than there was a switch and I could no longer hear anything and that is when I had to turn the volume up and up.
My ears had become a "major" problem as it relates to RSD, the static, ringing, hissing and very loud echos, made it impossible to listen at regular volume.
The echos would always increase in loudness when my face was touching the pillow, either side, while trying to get some sleep, which often did not come, I would fall asleep out of sheer exhaustion.
The itchiness in my ears was so bad, that I scratched until I drew blood, I simply could not stop.
This has gone down now, but it flares up now and than.
At the current stage, I can listen to my TV at regular volume again.
There is something else that happened when my hearing changed.
I am what you might want to call a "world news" junky, I need to be informed, but it got to a point where I could no longer listen to the news, any news.
Frustrated, I began to analyse why news had such an effect on me and it was rather quickly when I realised, that news is 90% or more negative.
We hear of conflicts, terrorism, corruptions, rape, abduction's, murder, natural disasters, conflicting, constantly changing medical statements, another bad medication on the market, racism and lack of equality, etc. etc., all of these all of a sudden had a very negative effect on me.
Some commercials became "impossible" to watch, because they actually increased my dizziness and nausea.
I remember one commercial in particular, it was a hair colour commercial that showed hair colour changes at high speed, watching this felt like looking right into a strobe light.
Over a period of time, I learned to pick and chose what I was able to watch, which usually were nature shows or anything with a happy ending.
I had never before realised, what negative effects certain news can truly have on us, which in turn makes me concerned for the children who are exposed to this on a daily bases.
Not being able to watch my news, I decided to read more, but this confronted me with yet another problem.
The "electricity" in my system was "completely out of control" it effected every part of me, therefore when I picked up a book and opened it and my fingers came close to a page, the pages would start flipping automatically, which naturally freaked me out at first.
I fully realise, that new books often do this, but the books I had were not new at all.
Once again I became curious why this was happening, simplistically we of course would think static, but that did not satisfy my mind.
A page consists of paper and paper comes from wood, which in turn comes from the earth, as we do.
This is when I began to research the hidden powers of our elements.
In eastern cultures, which "clearly" have been around much longer than the western world, wood is one of the five elements.
This constant need of mine to find answers became an obsession, an obsession I did not know how to stop, it was as if something was driving me to search for more and more.
Trust me, there were countless times when I wanted all of this to stop, I was dealing with so much RSD stuff already, but there was no switch to turn it off.
One day, a neighbor who knew that I was suffering from RSD, presented me with a tiny little book called 101 Power Thoughts.
In that book I found something that would eventually change my road of discoveries.

" Ask and it will be given to you; seek and you will find; knock and the door will be opened to you."
Matthew 7:7

Most of us are familiar with this, but I had no idea, that these are more than words, they are actions.

Add to all of this my vision changes, which did "not" decrease my vision, but rather "increase" them.
Visual imagery, does not happen in the eyes, but behind the eyes.

How did all of this help me deal with RSD in the past or present?
I have gained knowledge and understanding of this disease and others of phenomenal magnitude, consequently talking to a doctor is a waste of my time.

Hopefully, there is something in this post for many.

Truth Seeker

[plumb bob]

Hi Skotw,

I have RSD. Had it for over two years. Social disruption is very common.
I am down to two humans. Less, when the lady and I split paths. December
is when the lease is up. Been together for eight years. Off and on, since injury.
I got rid of different ppl, for diff. reasons. Some enjoyed drama in there lives.
Others were just annoying. And others still, leave their way just to suck up my
time. It is hard to walk, and I don't like ppl making me late.

I do realize that this is not their fault. Doesn't change the facts, though.
If I asked someone to stop jumping around me, and they didn't, am only left with
two other choices. Flight out of there, where ppl don't listen. Or fight the person
verbally, until they leave. One or the other. Not like I didn't try to ask first.

Sorry about the demeanor. Hope you can do better than I, with regards to
your disruptions. I was a pacifist. Now, just an injured animal.

Take care, and good luck in October!

[reruho]

I had forgotten about the ringing in my ears. I guess I have become accustomed to it that I don't think about it. It is a pain because it does it does distort sounds.

I thought of some other things, when my pain levels are high my gums become very tender and my teeth hurt. I also get physically ill (nausea and throwing up) when the pain get high. Sweating is another thing that drives me crazy. I have noticed my RSD arm produces 2-3 times the sweat that the non-RSD arm does.

Skot, Have you gone to your family doctor about the anxiety and depression. My Primary has been the one that helped me keep it together.

I find like to spend time by myself. I am not sure why, but people wear me out.
Reta

[skotw]

Hi reruho,

w/c will not get me a appointment with a primary care dr. and so far my pain mngmnt dr. has requested a p/c dr. for my anxiety and nerves but w/c wont do it for me. w/c will not set me up for a new ortho dr. either. My old ortho moved outta state. now all i have is a pain mngmnt dr. I HATE W/C!!!!!!!...they just wanna get outta there responsibility of my disorder.

[plumb bob]

Hey Skotw,

I hate W/C also. I did get an attorney, so they would have to accept RSD, as a condition, first.
That wasn't so hard. Just stressful. There are special forms that let w/c know that you are represented.
They made those forms, for a reason. I have had a really difficult time with w/c, and their lack of approvals. It took me awhile to think, that maybe, just maybe, SOME denials are a blessing.
Got shot down for more symp nerv blocks. My back couldn't take them, anyway. They cannot
even stick an I.V. in me, without three specialists, and at least a half-hour. May have a heart attack
next time. Very painful. Wasn't until my first block. Then it got much worse.

We can't really say anything incriminating, here. However, Washington is a big state. I know how they work up here. They have rules, regs., and timeframes to opperate within. When they do not,
is when YOU, a citizen, can write a letter to your Governor. They have to report to him/her, and
answer too! I could have gotten by without an Atty., but, I cannot assume that all would have gone as well. Like it is really well, at all. You may still have private insurance? Mine expired when I took the paycut. Although, in most states, you really should hit up a psych. on your own. They may be able to lean on your case manager, for you. Had a chiropractor do that for me. He knew of RSD. I walk
slowly and painfully, so after a year, my back was BAAAADD. They denied my back, of coarse.
He was able to identify a corralation from my knee to my back. They could not argue, after that.

Curious as to your outcomes. Hang in there!
Carl

[christine1003]

hey skot,
everything you are feeling is part of rsd i get that way too sometimes going off for no reason at all i am also in the orlando area and my pm treats my rsd, depression and anything to do with my nerves he is out of the national pain institute on lake mary blvd i just had a stimulator installed (wont be on for 2 weeks though) but these people have been good to me

good luck

christine

[reruho]

Plumb Bob,
What part of Washinton state are you from? I have relatives all over the state. One brother in Darrington about an hour north of Seattle. A sister and two brothers in Tacoma. My mother's family (lots of cousins) is from Yakima and I have another sister outside of Spokane.

I was in Washington in the first part of May. I was surprised how cold it was there at that time of year. I enjoyed the flowers, especially the lilacs, since lilacs don't grow in Florida. I grew up with lilacs and they make think of spring.
Reta