Reflex Sympathetic Dystrophy (RSD)

[meglaser]

Sorry again!

Everyone here understands what we go through better than the people we live with and better than most of the docs. Believe or not I still have the blster and the burning is traveli ng up my arm! Because I had complications with my pain meds (the hospital chacked it up to overdose when I was experiencing sinkape and gas poising! I do not think I will make it without something everything hurts rsd and back and neck and head and my stomache and my sincape I am just so down an disgusted - I try to be happy! I am so sorry everyone you dont deserve to hear me gripe as I should be helping the people who are just experience this demon!

[Shay70]

Don't be sorry that you are griping. You help others and others help you. It goes both ways.

I know what you are talking about when you say that you try to be happy. You paint a smile on your face but inside you feel really down. It is bad enough to hurt so don't beat up on yourself because you need to gripe. Be kind to yourself. Give yourself permission to vent when neccessary. Remember there are others who care.

Hope your pain lessens and your mood lifts. God bless.



Shay

[Bussey]

Hello Meg,

When I was signing into the RSD forum this morning, I was surprised to see a post from you on the ADHD forum. I did leave a response. In addition to dealing with this monster, you have so many other serious issues, that you are confronted with, on a daily basis. For that, I feel very badly for you, and my heart goes out to you.

First of all, it sounds like you are attempting to deal with your RSD pain, without medication. I really believe you need to deal with that now. Some individuals may be at the level, where they are able to deal with their pain, without medication. I for one, have not reached that plateau, as of yet. It sounds like your pain level has gone beyond your tolerance level, and you need to do something to manage that pain. If you are still seeing doctors that you trust, and that you feel are helpful to you, as well as, understand what you are dealing with, I would suggest that you see your Dr., and ask for help in controlling, or managing your pain.

Secondly, as you already know, depression is a byproduct of dealing with chronic pain. I believe your pain levels are causing you to be even more depressed, because they are out of control. I believe it will help your state of mind, when your pain levels are managed more efficiently. Also, because of the other issues that you are faced with every day, I believe that seeing a psychologist who specializes in helping you to live with the changes that occur in your life, as a result of living with RSD, and other chronically painful conditions, would be very beneficial to you, as well.

Stay in touch. There are individuals here who care about your well being. Remember that!

You are in my thoughts and prayers.

Bussey

[babbs]

it is quite ok to complain..and who better to gripe to is others that know what you are feeling.... it will get better

[meglaser]

Thanks!

it is so nice to hear from you - it feels like ages i hope all is well. I just started s chool iam taking graduate courses as well as going for an assoc (unemployment is paying for that one) any way i am tired of hurting i am tired of docs. My stomache is starting up again which will mean back to the hospital. Pain mgt took me off of my pain meds and I just hurt so badly that all can do is sit which is one of the reasons why i went back to school, (which almost seems to be a waste of time except that i am exercising my brain . My memory is so bad!

I hope that you have been well!
MEG

[meglaser]

thanks - i just feel like everyday there is a different pain but it is that old cycle going round and round. and since my meds are messed up and i cannot have any more nerve blocks (for now) I just do not think I am going to make it. My stomache is acting up and my RSD is flared it just dosen't end - you know what i am talking a bout Also keep in mind i am my own enemy as i went back to school. Well i do thank u for your ear!

God Bless and talk to you soon!

MEG

[reruho]

Meg,
I am so sorry that you are hurting and so down. It is no wonder you are so depressed, with elevated pain levels!!!!

Now, what is your PM thinking taking you off all your pain meds. I am hearing more and more of this. Don't these people realize that underdosing of patients is happening more often than overdosing patients. Chronic pain is serious disease and needs treatment. You would not take all (or give a diabetic half of) the insulin they need and expect them to be healthy. Why do they think they can take away someone's pain medication and expect them to be healthy??? This is fallout from Michael Jackson's death. The DEA is getting more involved in prescription drugs and they assume anyone taking prescription drugs are druggies.

I got a new primary in June and I was grilled when he saw vicodin on my list of medications. I was humilated and then I got angry. Before the next appointment I did a pill count of every prescription and brought all my meds in for him to inspect. I also told him that I was very angry he would question my integerity and ability to manage my medication. It turned out I had taken 6 vicodin in the 10-11 weeks since picking up the prescription. Obviously, my PM trusts me because he has not required me to sign a contract. I have gotten another new primary assigned to me and I am preparing for another grilling next month.

Sorry to go off on the tangent.

Reta

[Jact2career]

I know how suddenly the feeling of being "down ", can come over you from the constant pain and the stress of pushing yourself to do things. Just today , I felt like crying for no reason other than I am trying to work and the strain on my right knee and leg is unbearable. You are not alone, although we feel that way when flare ups occur. I have been dealing with RSD for two years now, it took 7 months to diagnose and several Dr.'s with different specialties. Controlling the pain and depression is really important for RSD. I hope you will consider trying medication as prescribed from a trusted Dr. and counselling can help you deal with the changes RSD brings into your life. Whatever you decide I am here as are others with RSD , to lend support and let you know we care and wish you pain free days.